Health Humanities Reader

Published by Rutgers University Press 2014

Health Humanities Reader

Edited by: Therese Jones , Delese Wear and Lester D. Friedman
With contributions by: Arthur W. Frank , David H. Flood , Rhonda L. Soricelli , Lisa Keränen , Michael Sappol , Shelley Wall , Martha Stoddard Holmes , Joseph N. Straus , Martin F. Norden , Lisa I. Iezzoni , Felicia Cohn , Martha Montello , John Lantos , Amy Haddad , Rebecca Garden , Mark Clark , Howard Brody , Rebecca J. Hester , Jack Coulehan , Rosemarie Tong , Sander L. Gilman , Bernice Hausman , Gretchen A. Case , Allen Peterkin , Alice Dreger , Marjorie Levine-Clark , Susan M. Squier , Rafael Campo , Sayantani DasGupta , Jonathan M. Metzl , Daniel Goldberg , Maren Grainger-Monsen , Thomas R. Cole , Benjamin Saxton , E. Ann Kaplan , Jerald Winakur , Bradley Lewis , Anne Hudson Jones , Michael Rowe , Ian Williams , Tod Chambers , Raymond C. Barfield , Lucy Selman , Jeffrey P. Bishop , Audrey Shafer , Catherine Belling , Paul Root Wolpe , Allison B. Kavey , Jeff Nisker , Julie M. Aultman , Michael Blackie , Erin Gentry Lamb , Alan Bleakley and Jay Baruch
Preface by: Mark Vonnegut

https://doi.org/10.36019/9780813562483

Overview
Contents

About this book

Over the past forty years, the health humanities, previously called the medical humanities, has emerged as one of the most exciting fields for interdisciplinary scholarship, advancing humanistic inquiry into bioethics, human rights, health care, and the uses of technology. It has also helped inspire medical practitioners to engage in deeper reflection about the human elements of their practice.

In Health Humanities Reader, editors Therese Jones, Delese Wear, and Lester D. Friedman have assembled fifty-four leading scholars, educators, artists, and clinicians to survey the rich body of work that has already emerged from the field—and to imagine fresh approaches to the health humanities in these original essays. The collection’s contributors reflect the extraordinary diversity of the field, including scholars from the disciplines of disability studies, history, literature, nursing, religion, narrative medicine, philosophy, bioethics, medicine, and the social sciences.

With warmth and humor, critical acumen and ethical insight, Health Humanities Reader truly humanizes the field of medicine. Its accessible language and broad scope offers something for everyone from the experienced medical professional to a reader interested in health and illness.

Author / Editor information

THERESE JONES is an associate professor at the Center for Bioethics and Humanities and director of the Arts and Humanities in Healthcare Program at the University of Colorado Anschutz Medical Campus. She is the editor of the Journal of Medical Humanities, and her extensive publications include Sharing the Delirium: Second Generation AIDS Plays and Performances.

DELESE WEAR is a professor of behavioral and community health sciences at Northeast Ohio Medical University. She has written and edited numerous books, including Educating for Professionalism: Creating a Culture of Humanism in Medical Education.

LESTER D. FRIEDMAN is chair of media and society at Hobart and William Smith Colleges. A leading scholar on media representations of medicine, he is the editor of Cultural Sutures: Medicine and Media and co-editor of Picture of Health: Medical Ethics and the Movies.

Reviews

"It's about time! The field of medical humanities has been waiting for a reader, and this one is it. With an excellent array of essays in appropriate topics by top people in the field, this book should set the standard for the next ten years. It will prove fascinating to undergraduates, graduate students in both the humanities and the health sciences, and to the general public and particularly those who are or will be patients—which of course is everyone."

— Lennard J. Davis, editor of The Disability Studies Reader

"[This book] consists of nearly 50 chapters, some of which deal with classic medical humanities topics, such as the notions of health and disease and the theory of the body. The majority of the book centers on more contemporary—some would say postmodern—issues, such as gender and sexuality, disability, and aging. Recommended."

— Choice

"This is a landmark volume that sets the standard for any future collection in medical/health humanities. It is by turns authoritative, funny, edgy, creative and personal—sometimes all in one piece.”

— Thomas R. Cole, Director, McGovern Center for Humanities and Ethics, University of Texas-Houston Medical School

"This bold, intelligent, and vitally comprehensive collection is a truly interdisciplinary achievement and an indispensible resource.Through twelve judiciously selected thematic clusters, Rutgers’s Health Humanities Reader consolidates this new subfield by capturing both the complexity and excitement of health humanities scholarship. An essential tool with practical applications both inside and outside the classroom."

— Andrea Charise, PhD, assistant professor of health studies, University of Toronto, Scarborough

Topics

Frontmatter Publicly Available Download PDF	i
Contents Publicly Available Download PDF	v
Foreword: Too Long Too Short Mark Vonnegut Publicly Available Download PDF	ix
Acknowledgments Publicly Available Download PDF	xiii
Introduction: The Why, The What, And The How Of The Medical/Health Humanities Lester D. Friedman, Delese Wear and Therese Jones Requires Authentication Unlicensed Licensed Download PDF	1
Part I. Disease And Illness
Chapter 1. Being A Good Story: The Humanities As Therapeutic Practice Arthur W. Frank Requires Authentication Unlicensed Licensed Download PDF	13
Chapter 2. Illuminating The It, Thee, And We Of Disease And Illness: The Metamorphosis And Related Works Rhonda L. Soricelli and David H. Flood Requires Authentication Unlicensed Licensed Download PDF	26
Chapter 3. “This Weird, Incurable Disease”: Competing Diagnoses In The Rhetoric Of Morgellons Lisa Keränen Requires Authentication Unlicensed Licensed Download PDF	36
Chapter 4. My Quest For Health Shelley Wall and Michael Sappol Requires Authentication Unlicensed Licensed Download PDF	50
Part II. Disability
Chapter 5. Disability In Two Doctor Stories Martha Stoddard Holmes Requires Authentication Unlicensed Licensed Download PDF	63
Chapter 6. Music And Disability Joseph N. Straus Requires Authentication Unlicensed Licensed Download PDF	77
Chapter 7. American Narrative Films And Disability: An Uneasy History Martin F. Norden Requires Authentication Unlicensed Licensed Download PDF	87
Chapter 8. Standout Lisa I. Iezzoni Requires Authentication Unlicensed Licensed Download PDF	97
Part III. Death And Dying
Chapter 9. When The Doctor Is Not God: The Impact Of Religion On Medical Decision Making At The End Of Life Felicia Cohn Requires Authentication Unlicensed Licensed Download PDF	103
Chapter 10. Postmodern Death And Dying: A Literary Analysis John Lantos and Martha Montello Requires Authentication Unlicensed Licensed Download PDF	113
Chapter 11. Second Degree Block: Poem And Commentary Amy Haddad Requires Authentication Unlicensed Licensed Download PDF	122
Part IV. Patient- Professional Relationships
Chapter 12. Social Studies: The Humanities, Narrative, And The Social Context Of The Patient-Professional Relationship Rebecca Garden Requires Authentication Unlicensed Licensed Download PDF	127
Chapter 13. Humanities And The Medical Home Rebecca Hester, Howard Brody and Mark Clark Requires Authentication Unlicensed Licensed Download PDF	138
Chapter 14. Occupational Medicine Jack Coulehan Requires Authentication Unlicensed Licensed Download PDF	149
Part V. The Body
Chapter 15. The Virtues Of The Imperfect Body Rosemarie Tong Requires Authentication Unlicensed Licensed Download PDF	155
Chapter 16. Seeing Bodies In Pain Sander L. Gilman Requires Authentication Unlicensed Licensed Download PDF	171
Chapter 17. Public Fetuses Bernice L. Hausman Requires Authentication Unlicensed Licensed Download PDF	186
Chapter 18. More Body: A Performance For Five (Or More) Bodies Gretchen A. Case Requires Authentication Unlicensed Licensed Download PDF	196
Part VI. Gender And Sexuality
Chapter 19. Adult Intake Form Allan Peterkin Requires Authentication Unlicensed Licensed Download PDF	203
Chapter 20. What Is Sex For? Or, The Many Uses Of The Vag Alice Dreger Requires Authentication Unlicensed Licensed Download PDF	207
Chapter 21. “I Always Prefer The Scissors”: Isaac Baker Brown And Feminist Histories Of Medicine Marjorie Levine-Clark Requires Authentication Unlicensed Licensed Download PDF	215
Chapter 22. Comics In The Health Humanities: A New Approach To Sex And Gender Education Susan M. Squier Requires Authentication Unlicensed Licensed Download PDF	226
Chapter 23. I Am Gula, Hear Me Roar: On Gender And Medicine Rafael Campo Requires Authentication Unlicensed Licensed Download PDF	242
Part VII. Race And Class
Chapter 24. Listening As Freedom: Narrative, Health, And Social Justice Sayantani DasGupta Requires Authentication Unlicensed Licensed Download PDF	251
Chapter 25. Race And Mental Health Jonathan M. Metzl Requires Authentication Unlicensed Licensed Download PDF	261
Chapter 26. Law’S Hand In Race, Class, And Health Inequities: On The Humanities And The Social Determinants Of Health Daniel Goldberg Requires Authentication Unlicensed Licensed Download PDF	268
Chapter 27. The Rooms Of Our Souls Maren Grainger-Monsen Requires Authentication Unlicensed Licensed Download PDF	277
Part VIII. Aging
Chapter 28. “Old Age Isn’T A Battle, It’S A Massacre”: Reading Philip Roth’S Everyman Benjamin Saxton and Thomas R. Cole Requires Authentication Unlicensed Licensed Download PDF	285
Chapter 29. “Do You Remember Me?” Constructions Of Alzheimer’S Disease In Literature And Film E. Ann Kaplan Requires Authentication Unlicensed Licensed Download PDF	295
Chapter 30. Love In The Time Of Dementia Jerald Winakur Requires Authentication Unlicensed Licensed Download PDF	304
Part IX. Mental Illness
Chapter 31. Narrating Our Sadness, With A Little Help From The Humanities Brad Lewis Requires Authentication Unlicensed Licensed Download PDF	311
Chapter 32. Teaching Narratives Of Mental Illness Anne Hudson Jones Requires Authentication Unlicensed Licensed Download PDF	321
Chapter 33. Community Psychiatry And The Medical Humanities Michael Rowe Requires Authentication Unlicensed Licensed Download PDF	330
Chapter 34. Culpability Ian Williams Requires Authentication Unlicensed Licensed Download PDF	341
Part X. Spirituality And Religion
Chapter 35. Rites Of Bioethics Tod Chambers Requires Authentication Unlicensed Licensed Download PDF	365
Chapter 36. Health And Humanities: Spirituality And Religion Lucy Selman and Raymond C. Barfield Requires Authentication Unlicensed Licensed Download PDF	376
Chapter 37. Scientia Mortis And The Ars Moriendi: To The Memory Of Norman Jeffrey P. Bishop Requires Authentication Unlicensed Licensed Download PDF	387
Chapter 38. Meditations Of An Anesthesiologist: Poem And Commentary Audrey Shafer Requires Authentication Unlicensed Licensed Download PDF	403
Part XI. Science And Technology
Chapter 39. Andromeda’S Futures: A Story Of Humanities, Technology, Science, And Art Catherine Belling Requires Authentication Unlicensed Licensed Download PDF	409
Chapter 40. Knowing And Seeing: Reconstructing Frankenstein Paul Root Wolpe Requires Authentication Unlicensed Licensed Download PDF	419
Chapter 41. A Brief History Of Love: A Rationale For The History Of Epidemics Allison B. Kavey Requires Authentication Unlicensed Licensed Download PDF	430
Chapter 42. Calcedonies Jeff Nisker Requires Authentication Unlicensed Licensed Download PDF	442
Part XII. Health Professions Education
Chapter 43. Teaching Autism Through Naturalized Narrative Ethics: Closing The Divide Between Bioethics And Medical Humanities Julie M. Aultman Requires Authentication Unlicensed Licensed Download PDF	479
Chapter 44. Courting Discomfort In An Undergraduate Health Humanities Classroom Erin Gentry Lamb and Michael Blackie Requires Authentication Unlicensed Licensed Download PDF	490
Chapter 45. The Medical Humanities In Medical Education: Toward A Medical Aesthetics Of Resistance Alan Bleakley Requires Authentication Unlicensed Licensed Download PDF	501
Chapter 46. In Defense Of Cheaper Stethoscopes Jay Baruch Requires Authentication Unlicensed Licensed Download PDF	511
References Requires Authentication Unlicensed Licensed Download PDF	517
Notes On Contributors Requires Authentication Unlicensed Licensed Download PDF	569
Index Requires Authentication Unlicensed Licensed Download PDF	575